Maeneo ya ukurasa huu ni kwa Kiingereza. Hariri tafsiri
PROFILE
NGO NAME: CHAMA CHA KUPAMBANA NA ATHARI ZA UKIMWI.
ACRONYM: CHAKUPAU.
ORGANIZATION’S HISTORY.
CHAKUPAU was established by six persons living with HIV/AIDS(PLWHA) who were enrolled in an HIV treatment program at the PASADA Dispensary in Temeke District, Dar-es-salaam Region, Tanzania on the 5th / August / 2004. They came to realize that being HIV-positive holds them together. By then it was clear that people who new their HIV-positive status were rarely involved in defining positive prevention or in related policy, programs, monitoring and evaluation, research and funding.
This did create two problems: An overemphasis on HIV testing rather than on needs of people who already know their status and; a focus on preventing HIV transmission rather than on preventive health services for PLWHA. The solution for the above problems was to form a network of PLWHA. Based on their commonalities they declared to work together within the principals of practical common sense.
This would have enabled them to access standard and high quality home based care. It was thought that cultivating and sustaining HBC culture would become imperative to complement already overstretched services of health workers and inadequate medical infrastructures. Training volunteer PLWHA as well as volunteer community residents as HBC-givers was seen to become a timely initiative.
CHAKUPAU has registration no. OONG 0585, registered under section 12 (2) of ACT No. 24 of 2005. It was registered on December 27, 2005. Its address is P.O. Box 42863, Dar -es-salaam. Tel. no. + 255 022 2864570 / +255 0716 411622/ 0752 569112/ +255 0716 673867. The e-mail addr es is chakupau@yahoo.com. Its offices are located in Temeke District, Chang'ombe ward, Bora Location, Ngorongoro Road, House plot no. 52. Contact.
The organization partners are : TANOPHA (Tanzania Network for People with HIV/AIDS); HDT (Human Development Trust); TEDINEPHA Temeke District Network of People with HIV/AIDS); FCS (Foundation For Civil Society).
Our referee are:
(1). Lucy Ngongoseke Kihwele,
Managing Director,
Luberere Investment Company Limited,
P.O. Box 14426, DSM, Tanzania.
Tel/Fax: +255 22 2807861
Mobile: + 255 754 602674 or + 255 787 000 996.
Email: lucy.kihwele@luberere.com.
(2). Lydia Rwechungura
Tel. no. 0652-130079/ 022 2700721/ 022 2700717
E-mail address: lydiarwechungura@yahoo.com’
Futures Group International, P.O. Box 76724, Dar-es-salaam.
(1). Chairperson-Local Government Authority, Bora Location, Changombe Ward, Temeke District, Dar-es-salaam Region, Tanzania. Mr. Vicent Semkuruto. P.O. Box
45093, Dar-es-salaam, Tanzania. Tel. no. 0713 210228.
(2). Secretary of the African Community NGO-Tim Jackson of Tel. no. +44 790 4153378. Fax no. + 44 87051677. tim@africancommunities.org. He is based in London, United Kingdom.
(3). Secretary, District HIV/AIDS Committee(SMAC), Human Resource Manager-CELLO, Mr. Martin Barua. Tel no. +255 754 860197. Email: martin@cello.co.tz..
CHAKUPAU activities concentrate on the Care and Support thematic area of HIV/AIDS impacts mitigating strategies, particularly specializing in the Home Based Care/ Palliative Care Sub-thematic area and entrepreneurship skills- capacity building for the PLWHA.
VISION.
“ To become a sustainable model of excellence in significantly reducing and mitigating HIV/AIDS’- social, economic and physical impacts on chronically ill persons including PLWHA through provision of comprehensive (holistic) Home Based Care/ Palliative Care and capacity building through entrepreneurship skills capacity building for PLWHA”.
MISSION.
Provision of comprehensive (holistic) home based care/ Palliative Care and entrepreneurship skill capacity building for PLWHA aimed at improving the quality of life and standard of care for chronically ill persons including PLWHA within their homes and health facilities which will include among others: physical; emotional; social; spiritual, legal/ economic support and entrepreneurship skills training.
CORE VALUES AND PHILOSOPHY.
• Integrity and transparency: CHAKUPAU believes in integrity, transparence, and accountability, as it implements on its gender sensitive principles within and without the organization.
• Diversity: CHAKUPAU believes in diversity of people’s rights and views as key ingredients towards transformative equality.
• Economic and social justice: CHAKUPAU advocates that all people including marginalized groups, such as persons living with HIV/AIDS (PLHA), women, youths own and control resources at all levels and benefit equally.
• Equality and equity: CHAKUPAU goal is to ensure that persons living with HIV/AIDS (PLHA) and any other disadvantaged groups are not discriminated on the basis health condition where access to resources and benefits is granted to all Tanzanians.
GENERAL OBJECTIVE.
To provide hope through quality and appropriate comprehensive (holistic) home based care/ palliative care and entrepreneurship skills capacity building for PLWH that help chronically ill persons including PLWHA, their family and care-givers.
In setting up the home based care and palliative program, the organization will ensure the importance of the following which constitutes the minimum package for HBC are in place or linked to:
• Access to counseling and testing
• All elements of palliative care including pain management.
• Medication adherence.
• Functional referral system.
• Psychological support.
• Nutrition guidance and food support.
• Participation of PLWHA.
• Male involvement
• Care for the carers.
• Health care for children, orphans and vulnerable children including sick children.
• Record and reporting system.
• Prevention interventions (e.g. PMTCT), condom programming).
The home based care will include the following components (activities/ services).
Physical: Care providers should always ensure that a patient receives adequate attention on the following;
• Treatment of opportunistic infections and appropriate nursing care at all times.
• ART-identification of patients, monitoring for side-effects and adherence.
• Pain relief with use of NSAIDs and Morphine.
• Nutritional care and support: provision of balanced diet to ensure adequate nutrients. The care-takers should be educated on the importance of appropriate food intake and guided on feeding patterns and preparation of food to suit the condition of the patient, and those on ART.
• Hygiene-the patient and the family members should be educated on the practice of basic hygiene e.g. oral, skin, hair and environmental care.
• Exercises-patients need to exercise regularly and if they are too weak the family members should assist the patient in doing passive exercises for body movement and to enhance blood circulation thus reducing the risks of complications such as bedsores and pulmonary problems.
Emotional support: Patients suffering from chronic or terminal illness usually have a lot of fear and worries. Care givers should therefore provide emotional support and help them to ventilate and deal with the conditions.
Social support: Patients suffering from chronic or terminal illness usually suffer from loneliness and neglect. It is therefore important for care-givers to interact with the patient and to include him/ her in decisions regarding his/her care. The patient should also be involved in recreational activities as appropriate and support or self0-help groups in the community should be identified for the patient to interact with.
Spiritual support: Addressing spiritual needs is an important aspect in any type of care. Chronically ill patients often loose hope, and reason to continue to live which is often relieved through reassurance and spiritual care. Spiritual needs of the patient must be determined and attended to appropriately.
Legal support: Patients should be informed about how to get legal aid that they need especially in the areas such as inheritance and human right issues.
Economic support: When a person is diagnosed with HIV/AIDS, this increases the financial burden to the family, as the family has to incur extra expenses for medical care. The infected bread earner may loose his/her job, while other issues such as children’s education, rent and others require money. Therefore it is necessary for home based acre givers to be aware of the support networks where such issues are addressed.
Other services/ activities include the following: Reduce stigma and discrimination at household and community level; rehabilitation support e.g. physiotherapy and occupational therapy; training and providing appropriate information concerning specific conditions/ illnesses; continuity of treatment for the specific diseases as per diagnosis and prescription; referral and networking among the care providers; supervision and monitoring; evaluation and re-planning.
Palliative Care: The palliative care approach will improve the quality of life of patients and their families facing the problem associated with life-threatening illness. Many aspects of palliative care will be applicable early in the course of illness. It affirms life and regards dying as a normal process. This can be done through the prevention and relief of suffering by means of early identification, assessment and treatment of pain and other problems, be it physical, psychological or spiritual.
The aim of those providing palliative care should be to improve the quality of life by removing or alleviating unpleasant symptoms and helping to prevent the patient from suffering, fear or loneliness. The palliative care must be provided wherever the patient is at home or in the hospital. It should aim at:
• Providing relief from pain and other distressing symptoms
• Neither hastening nor postponing death.
• Integrating the psychological and spiritual aspects of patient care.
• Offering support system to help patients live as actively as possible until death.
• Offering a support system to help the family cope during the patient’s illness and in their own bereavement.
• Using a team approach to address the needs of patients and their families, including bereavement counseling, if indicated.
• Enhancing quality of life, and may also positively influence the course of the illness.
The role of HBC in palliative care: The HBC provider can apply principles of palliative care in the home. Effective palliative care requires access to a range of drugs including opioids ad extended training. The HBC provider will be responsible for:
• Identify the pain and symptom needs of the patients including the need for strong analgesics e.g. morphine which will be available on prescription at the health facility. Among the commonest symptoms are: pain; breathlessness; vomiting; itching; bedsores; painful sores in the mouth
• Educate on the administration of drugs for symptom relief and monitor the side effects.
• Refer where appropriate.
• HBC providers should be taught about terminal care.
• HBC providers should be conversant with care of the dead body. Universal precautions stipulate that all people, no matter what they have died from, should be treated the same. People preparing the dead bodies should be instructed to wear gloves, and follow the hand washing procedure. Bleach powder should be used if the body is seeping out fluids. Disposal and care of linen, instruments, and other materials should follow the same procedures normally used for disinfection, sterilization and disposal of contaminated materials.
Entrepreneurship skills for capacity building for Persons Living With HIV/AIDS. In this section PLWHA will be given a range of training in entrepreneurship skills.
ORGANIZATION MANAGEMENT.
The chairman of the organization is the overall in-charge of all organization activities. Currently the chairman is Mr. Peter Kisima. He has over seven years experience in the management position of different NGOs. Prior to becoming the chairman he was an organization’s chairman. He has undergone several different trainings which pertain to HIV/AIDS epidemic prevention and control.
Our project Coordinator is Dr. Joseph Mgassa. He is a preventive medicine degree holder with extensive experiences in the field of public health, well versed with public health theories, concepts and practices. His principal duties are:
(a). Administration: Coordinate all field activities to ensure that there are tangible results. Ensure national standard guidelines on HBC care and support are understood and implemented; work closely with project staff to prepare annual work plans and budgets; have a clear understanding of the project cooperative agreement and ensure compliance during regular monitoring visits; execute internal controls including investigation of procurement as needed.
(b).Capacity building: work with DMO, District HIV/AIDS Control Coordinator and District HBC Co-coordinator to provide guidelines to the members on training primary caregivers to provide quality nursing care, nutritional, material and referral services.
(c). Partnerships and dissemination of best practices: Liaison and collaborate with other stakeholder to ensure that PLHIV get their needs; represent the project in event and forums with other stakeholders; promote partnerships between the organization, district authorities and other partners through collaborative research and documentation of quantitative and qualitative information on HBC.
Catherine Yusufu is a trained nurse. She is the HBC head of department.
Our Vice-Chairperson is Farida Momba. She has passed through a three months home based care training. Since completing the training she has been working as a HBC provider for over five years.
Our Accountant Mr. Hamisi Kombo has Accounting Technician Certificate. Together with our Treasurer Mr. Kilindi Pembe performs the following duties:
(a). Produce timely analysis of financial data and reported findings with recommendations to management as well as ensuring annual close of accounts are properly prepared and submitted on time for verification and approval.
(b). Manage the control of cash, ensure payments due and receivable are dealt with promptly and accurately.
(c). Monitor the status of obligations including purchase orders for goods and services to ensure availability of funds.
(d). Preparation of yearly budgeting and planning.
(e). Prepare daily and monthly management report.
(f). Monitoring and controlling expenditure and revenue accounts.
NGO NAME: CHAMA CHA KUPAMBANA NA ATHARI ZA UKIMWI.
ACRONYM: CHAKUPAU.
ORGANIZATION’S HISTORY.
CHAKUPAU was established by six persons living with HIV/AIDS(PLWHA) who were enrolled in an HIV treatment program at the PASADA Dispensary in Temeke District, Dar-es-salaam Region, Tanzania on the 5th / August / 2004. They came to realize that being HIV-positive holds them together. By then it was clear that people who new their HIV-positive status were rarely involved in defining positive prevention or in related policy, programs, monitoring and evaluation, research and funding.
This did create two problems: An overemphasis on HIV testing rather than on needs of people who already know their status and; a focus on preventing HIV transmission rather than on preventive health services for PLWHA. The solution for the above problems was to form a network of PLWHA. Based on their commonalities they declared to work together within the principals of practical common sense.
This would have enabled them to access standard and high quality home based care. It was thought that cultivating and sustaining HBC culture would become imperative to complement already overstretched services of health workers and inadequate medical infrastructures. Training volunteer PLWHA as well as volunteer community residents as HBC-givers was seen to become a timely initiative.
CHAKUPAU has registration no. OONG 0585, registered under section 12 (2) of ACT No. 24 of 2005. It was registered on December 27, 2005. Its address is P.O. Box 42863, Dar -es-salaam. Tel. no. + 255 022 2864570 / +255 0716 411622/ 0752 569112/ +255 0716 673867. The e-mail addr es is chakupau@yahoo.com. Its offices are located in Temeke District, Chang'ombe ward, Bora Location, Ngorongoro Road, House plot no. 52. Contact.
The organization partners are : TANOPHA (Tanzania Network for People with HIV/AIDS); HDT (Human Development Trust); TEDINEPHA Temeke District Network of People with HIV/AIDS); FCS (Foundation For Civil Society).
Our referee are:
(1). Lucy Ngongoseke Kihwele,
Managing Director,
Luberere Investment Company Limited,
P.O. Box 14426, DSM, Tanzania.
Tel/Fax: +255 22 2807861
Mobile: + 255 754 602674 or + 255 787 000 996.
Email: lucy.kihwele@luberere.com.
(2). Lydia Rwechungura
Tel. no. 0652-130079/ 022 2700721/ 022 2700717
E-mail address: lydiarwechungura@yahoo.com’
Futures Group International, P.O. Box 76724, Dar-es-salaam.
(1). Chairperson-Local Government Authority, Bora Location, Changombe Ward, Temeke District, Dar-es-salaam Region, Tanzania. Mr. Vicent Semkuruto. P.O. Box
45093, Dar-es-salaam, Tanzania. Tel. no. 0713 210228.
(2). Secretary of the African Community NGO-Tim Jackson of Tel. no. +44 790 4153378. Fax no. + 44 87051677. tim@africancommunities.org. He is based in London, United Kingdom.
(3). Secretary, District HIV/AIDS Committee(SMAC), Human Resource Manager-CELLO, Mr. Martin Barua. Tel no. +255 754 860197. Email: martin@cello.co.tz..
CHAKUPAU activities concentrate on the Care and Support thematic area of HIV/AIDS impacts mitigating strategies, particularly specializing in the Home Based Care/ Palliative Care Sub-thematic area and entrepreneurship skills- capacity building for the PLWHA.
VISION.
“ To become a sustainable model of excellence in significantly reducing and mitigating HIV/AIDS’- social, economic and physical impacts on chronically ill persons including PLWHA through provision of comprehensive (holistic) Home Based Care/ Palliative Care and capacity building through entrepreneurship skills capacity building for PLWHA”.
MISSION.
Provision of comprehensive (holistic) home based care/ Palliative Care and entrepreneurship skill capacity building for PLWHA aimed at improving the quality of life and standard of care for chronically ill persons including PLWHA within their homes and health facilities which will include among others: physical; emotional; social; spiritual, legal/ economic support and entrepreneurship skills training.
CORE VALUES AND PHILOSOPHY.
• Integrity and transparency: CHAKUPAU believes in integrity, transparence, and accountability, as it implements on its gender sensitive principles within and without the organization.
• Diversity: CHAKUPAU believes in diversity of people’s rights and views as key ingredients towards transformative equality.
• Economic and social justice: CHAKUPAU advocates that all people including marginalized groups, such as persons living with HIV/AIDS (PLHA), women, youths own and control resources at all levels and benefit equally.
• Equality and equity: CHAKUPAU goal is to ensure that persons living with HIV/AIDS (PLHA) and any other disadvantaged groups are not discriminated on the basis health condition where access to resources and benefits is granted to all Tanzanians.
GENERAL OBJECTIVE.
To provide hope through quality and appropriate comprehensive (holistic) home based care/ palliative care and entrepreneurship skills capacity building for PLWH that help chronically ill persons including PLWHA, their family and care-givers.
In setting up the home based care and palliative program, the organization will ensure the importance of the following which constitutes the minimum package for HBC are in place or linked to:
• Access to counseling and testing
• All elements of palliative care including pain management.
• Medication adherence.
• Functional referral system.
• Psychological support.
• Nutrition guidance and food support.
• Participation of PLWHA.
• Male involvement
• Care for the carers.
• Health care for children, orphans and vulnerable children including sick children.
• Record and reporting system.
• Prevention interventions (e.g. PMTCT), condom programming).
The home based care will include the following components (activities/ services).
Physical: Care providers should always ensure that a patient receives adequate attention on the following;
• Treatment of opportunistic infections and appropriate nursing care at all times.
• ART-identification of patients, monitoring for side-effects and adherence.
• Pain relief with use of NSAIDs and Morphine.
• Nutritional care and support: provision of balanced diet to ensure adequate nutrients. The care-takers should be educated on the importance of appropriate food intake and guided on feeding patterns and preparation of food to suit the condition of the patient, and those on ART.
• Hygiene-the patient and the family members should be educated on the practice of basic hygiene e.g. oral, skin, hair and environmental care.
• Exercises-patients need to exercise regularly and if they are too weak the family members should assist the patient in doing passive exercises for body movement and to enhance blood circulation thus reducing the risks of complications such as bedsores and pulmonary problems.
Emotional support: Patients suffering from chronic or terminal illness usually have a lot of fear and worries. Care givers should therefore provide emotional support and help them to ventilate and deal with the conditions.
Social support: Patients suffering from chronic or terminal illness usually suffer from loneliness and neglect. It is therefore important for care-givers to interact with the patient and to include him/ her in decisions regarding his/her care. The patient should also be involved in recreational activities as appropriate and support or self0-help groups in the community should be identified for the patient to interact with.
Spiritual support: Addressing spiritual needs is an important aspect in any type of care. Chronically ill patients often loose hope, and reason to continue to live which is often relieved through reassurance and spiritual care. Spiritual needs of the patient must be determined and attended to appropriately.
Legal support: Patients should be informed about how to get legal aid that they need especially in the areas such as inheritance and human right issues.
Economic support: When a person is diagnosed with HIV/AIDS, this increases the financial burden to the family, as the family has to incur extra expenses for medical care. The infected bread earner may loose his/her job, while other issues such as children’s education, rent and others require money. Therefore it is necessary for home based acre givers to be aware of the support networks where such issues are addressed.
Other services/ activities include the following: Reduce stigma and discrimination at household and community level; rehabilitation support e.g. physiotherapy and occupational therapy; training and providing appropriate information concerning specific conditions/ illnesses; continuity of treatment for the specific diseases as per diagnosis and prescription; referral and networking among the care providers; supervision and monitoring; evaluation and re-planning.
Palliative Care: The palliative care approach will improve the quality of life of patients and their families facing the problem associated with life-threatening illness. Many aspects of palliative care will be applicable early in the course of illness. It affirms life and regards dying as a normal process. This can be done through the prevention and relief of suffering by means of early identification, assessment and treatment of pain and other problems, be it physical, psychological or spiritual.
The aim of those providing palliative care should be to improve the quality of life by removing or alleviating unpleasant symptoms and helping to prevent the patient from suffering, fear or loneliness. The palliative care must be provided wherever the patient is at home or in the hospital. It should aim at:
• Providing relief from pain and other distressing symptoms
• Neither hastening nor postponing death.
• Integrating the psychological and spiritual aspects of patient care.
• Offering support system to help patients live as actively as possible until death.
• Offering a support system to help the family cope during the patient’s illness and in their own bereavement.
• Using a team approach to address the needs of patients and their families, including bereavement counseling, if indicated.
• Enhancing quality of life, and may also positively influence the course of the illness.
The role of HBC in palliative care: The HBC provider can apply principles of palliative care in the home. Effective palliative care requires access to a range of drugs including opioids ad extended training. The HBC provider will be responsible for:
• Identify the pain and symptom needs of the patients including the need for strong analgesics e.g. morphine which will be available on prescription at the health facility. Among the commonest symptoms are: pain; breathlessness; vomiting; itching; bedsores; painful sores in the mouth
• Educate on the administration of drugs for symptom relief and monitor the side effects.
• Refer where appropriate.
• HBC providers should be taught about terminal care.
• HBC providers should be conversant with care of the dead body. Universal precautions stipulate that all people, no matter what they have died from, should be treated the same. People preparing the dead bodies should be instructed to wear gloves, and follow the hand washing procedure. Bleach powder should be used if the body is seeping out fluids. Disposal and care of linen, instruments, and other materials should follow the same procedures normally used for disinfection, sterilization and disposal of contaminated materials.
Entrepreneurship skills for capacity building for Persons Living With HIV/AIDS. In this section PLWHA will be given a range of training in entrepreneurship skills.
ORGANIZATION MANAGEMENT.
The chairman of the organization is the overall in-charge of all organization activities. Currently the chairman is Mr. Peter Kisima. He has over seven years experience in the management position of different NGOs. Prior to becoming the chairman he was an organization’s chairman. He has undergone several different trainings which pertain to HIV/AIDS epidemic prevention and control.
Our project Coordinator is Dr. Joseph Mgassa. He is a preventive medicine degree holder with extensive experiences in the field of public health, well versed with public health theories, concepts and practices. His principal duties are:
(a). Administration: Coordinate all field activities to ensure that there are tangible results. Ensure national standard guidelines on HBC care and support are understood and implemented; work closely with project staff to prepare annual work plans and budgets; have a clear understanding of the project cooperative agreement and ensure compliance during regular monitoring visits; execute internal controls including investigation of procurement as needed.
(b).Capacity building: work with DMO, District HIV/AIDS Control Coordinator and District HBC Co-coordinator to provide guidelines to the members on training primary caregivers to provide quality nursing care, nutritional, material and referral services.
(c). Partnerships and dissemination of best practices: Liaison and collaborate with other stakeholder to ensure that PLHIV get their needs; represent the project in event and forums with other stakeholders; promote partnerships between the organization, district authorities and other partners through collaborative research and documentation of quantitative and qualitative information on HBC.
Catherine Yusufu is a trained nurse. She is the HBC head of department.
Our Vice-Chairperson is Farida Momba. She has passed through a three months home based care training. Since completing the training she has been working as a HBC provider for over five years.
Our Accountant Mr. Hamisi Kombo has Accounting Technician Certificate. Together with our Treasurer Mr. Kilindi Pembe performs the following duties:
(a). Produce timely analysis of financial data and reported findings with recommendations to management as well as ensuring annual close of accounts are properly prepared and submitted on time for verification and approval.
(b). Manage the control of cash, ensure payments due and receivable are dealt with promptly and accurately.
(c). Monitor the status of obligations including purchase orders for goods and services to ensure availability of funds.
(d). Preparation of yearly budgeting and planning.
(e). Prepare daily and monthly management report.
(f). Monitoring and controlling expenditure and revenue accounts.